I’ve been listening to an author talk about a book she has recently published on her mother’s dementia based mainly on many recorded conversations they had about her experience of living with dementia, and she said at one point that she is “Sitting on a gold mine”. I am sure the book is terrific, and listening to the reviews of it today, it does sound like a more positive book written by a family carer, but that particular comment is deeply concerning.
As my blog There is Big Money in Dementia written some time ago suggests, there is indeed big money in dementia. It concerns me greatly the people with this disease are being exploited so much, even by those who mean well. It is not only Big Pharma, service providers and commercial organisations (e.g. Luminosity), but many of those very people who are ‘caring’ for us.
I’m sure many of the movies, books and…
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Fran's World of Wonder 